A story or status post pops up on my Facebook feed from one of the many autism parent bloggers I follow, and it usually falls into one of these common autism parent themes:
- Sleep Issues: The kid won’t sleep! or The kid woke up in the wee hours…again! or Thank God for Melatonin.
- Meltdowns & Aggression: Wow, that meltdown was epic and over nothing! or Strangers were asses today when my kid was melting down. or I am tired of being hit, bit, kicked, etc.
- Potty Misery: I can’t toilet train this kid. or Why does this kid hold it for days?
- School Issues: IEP meetings suck. or The school sucks. or Oh-oh…the school number just popped up on my screen-what did he/she do this time?
- Co-morbid medical issues: Nightmare at the doctor today. or Horrible ordeal with lab testing today. or Trying to get medicine in my kid is the worst.
- Food issues: My kid won’t eat and we are off to the feeding clinic. or OMG, all the time I am spending on this special diet is exhausting!
- I am Going Nuts: Can’t wait for the kid to go back to school. or I am hiding in the bathroom because I can’t take it anymore. or Why won’t this kid stop doing [insert massively annoying obsessive activity/vocalization]?
Honestly, it is getting harder and harder for me to relate to many of the posts I see come across the feed, because many of the problems we used to have are not problems anymore. Beth is still very delayed across the board (physical, fine motor, speech, social, and play), is a “slow progressor,” she is a wanderer, and she can have high anxiety in certain situations. BUT, on the very positive side, she is a great sleeper now, meltdowns and aggression are a distant memory, she is potty trained, we are happy with our school situation (homeschooling), she is healthy, she is a good eater, she lets me guide her, I enjoy being with her, and I see signs of progress every day. I am grateful. I am at peace. I feel lucky. And…I feel a bit guilty.